Empowering Lives Through Community
The Kelsey Elizabeth Taylor Foundation endeavors to bring greater awareness of the struggles affecting individuals, their caregivers, and their families who suffer from the lifelong challenges created by Sickle Cell Disease and Leukemia. The Foundation provides financial support to pursue life goals and to help improve overall health and well-being for these individuals.
Read Kelsey’s Impactful Letter:
Kelsey’s letter: ‘This disease is nothing but pain and misunderstanding.’
Watch Kelsley read her Poem “Time Gone”:
Kelsey Elizabeth Taylor
Kelsey Elizabeth Taylor courageously lived with Sickle Cell Disease (SCD) all her life and with Acute Myeloid Leukemia (AML) for her last year of life. Sickle Cell Disease (SCD) is an inherited, lifelong disorder that results in severe anemia and chronic debilitating pain with frequent hospitalizations. Kelsey not only lived with the devastating consequences of SCD but due to one of her treatments, developed AML in 2020.
Despite bravely enduring intensive treatment, she, unfortunately, passed away on May 6, 2021, at the age of 27. Even at a young age, Kelsey worked extensively to bring awareness to SCD and advocate for better treatment and services for patients and families. She was a youth ambassador for the Massachusetts Sickle Cell Disease Association (formally known as Greater Boston Sickle Cell Disease Association (MSCA)), speaking on radio shows and before the Boston City Council about living with SCD. She worked with Pfizer on patient-family initiatives including a Boston Globe series called, “Dear Scientist” and a social media campaign, “A Lens on Life”.
Kelsey was an amazing person with incredible strength, compassion, and love in her heart. Although she will never know the impact she had on so many people, the world is a better place because of her. One of Kelsey’s last wishes was to create a foundation to help improve the quality of life of those suffering from SCD and AML.
The Kelsey Elizabeth Taylor Foundation was created to continue Kelsey’s legacy. We hope to increase awareness about SCD and AML and to support individuals and their families with these disorders in a variety of ways, which includes grants for education and for complementary medical services not typically covered by insurance.
Pfizer Campaign: A Lens on Life
Our Core Values
Support
We are dedicated to supporting a welcoming environment, where individuals and families/caregivers can connect and build a strong sense of community. Financial support is offered to help those affected to pursue academic and career goals as well as funding for complementary therapies such as acupuncture, massage, and mindful meditation, to improve quality of life.
Community
We are dedicated to creating a strong community for individuals impacted by sickle cell anemia and leukemia. Our support groups and community events offer opportunities for patients and their families to connect and reduce isolation while promoting social support. This approach has a positive impact on the overall health and well-being of our community members.
Education
We are committed to empowering individuals and their families by providing a diverse range of educational resources and information on disease management, treatments, and practical day-to-day tips. We also strive to increase awareness of the condition and educate the general public on how to support those affected.
The KET Foundation Scholarship
Empower individuals affected by Sickle Cell Disease and Leukemia to pursue their educational aspirations, fostering personal growth and resilience.
Fuel Resilience through Giving
Your generosity directly impacts the lives of patients and caregivers, providing them with the resources they need to face their challenges with courage and determination.
Meet our Board Members
The KET Foundation is proud to have a board of directors that is both strong and diverse, bringing together a wealth of experience and a variety of perspectives to guide our organization forward.
